Showing posts with label autoimmune. Show all posts
Showing posts with label autoimmune. Show all posts

Tuesday, 22 July 2014

This Thing That's Wrong With Me.

I'm so so very tired, much more than usual, some of you may remembering me saying that I have suspected Lupus, well what ever it is is absolutely knocking me senseless right now, one minute I'm absolutely fine and the next I feel like an octogenarian arthritic Snorlax, you know those fat sleepy (but very cute) Pokemon.
It's been beautiful here over the last week, the sun is shining and the birds are singing, I however am not, I didn't realise that if I do have Lupus, I should totally with out doubt stay out of the sun, I was only when I felt my joints starting to hurt, needing to sleep as much as humanly possible and that my skin came up red patches, itched and felt like it was about to fall off did I realise that I should really stay inside, it's like I've reached some level of ultra goth, I may even invest in a pretty black parasol to go with my melancholy when it comes to daylight.
I'm just waiting for my appointment with rheumetology to get to the bottom of this, my GP is pretty sure that it is Lupus, part of me hopes it is so I can take steps to deal with head on but until I know for sure there's not much I can do. Hopefully this flare won't last long and normal business can be resumed.

Sunday, 16 March 2014

I'm Sorry It's Been A While.

At the beginning of the year, my dad suffered a heart attack, we are very lucky that he is still with us but the heart attack has been very difficult for us as a family to deal with. My dad recovered pretty quickly but he was left unable to drive or work for at least a month. My parents live in a little village that hasn't got great connections, so I spent a lot of time helping out or keeping my dad company whilst my mum was at work, although it meant I had very little time to myself what with that, having to take Mr Badger to and from work and the chores of everyday life with a toddler in tow it was nice to spend some quality time with my dad.

Shortly after my dad returned to work I started feeling a bit run down and extremely tired, I put it down to having a cold coming but the cold never came. On the whole I rarely get ill, but there has been regular times in my life where this has happened. I was suffering from a Hidradenitis suppurativa flare up which can happen when I'm run down and just so happened to be looking into foods that could cause a reaction with auto immune diseases when I came across a girl who had managed to put her auto immune diesease into remission. She has Lupus an auto immune diesease that I wasn't at all familiar with, interested in how she put it into remision with diet I started to read, it was like a light switch turned on, as I was reading I was ticking off these symptoms that I'd been having on and off for years, things like the tiredness but also joint pain, migraines, but most importantly, the butterfly rash across my face. I've been to my previous Dr several times with these symptoms and every one has insisted I was tested for diabetes, every time the test came back negative. This time my current doctor was a lot more helpful, I explained how I had come across it and he was more than happy to order the tests. It's been a couple of weeks since then, my first round of tests showed that I am severely deficient in vitamin D which can, in itself cause fatigue, another part of the test showed that  my ANA also came back positive and the way they are stained indicates Lupus but I have to have some further tests to confirm it. Part of me hopes for a diagnosis, just so I can tackle this head on, but we shall see.

Anyway, this is why I've been AWOL, but you'll be pleased to know I'm back and bloggier than ever!